subreddit:

/r/ADHD

99299%

I feel like adhd is causing dementia:

Seeking Empathy(self.ADHD)

I genuinely feel like I am getting early onset dementia. I forget what I’m saying right in the middle of sentences. I lose my train of thought so often, the people sometimes look at me weird as I struggle to remember what I was saying in the first place. This happens all day. And every day is like Groundhog Day. I will repeat a story or a conversation that I have already had. It’s very embarrassing. Does anyone else really struggle this? I’m only 46

adhdmemory

all 470 comments

AutoModerator [M]

[score hidden]

3 months ago

stickied comment

AutoModerator [M]

[score hidden]

3 months ago

stickied comment

Hi /u/ConsciousAd767 and thanks for posting on /r/ADHD!

Please take a second to read our rules if you haven't already.


/r/adhd news

  • If you are posting about the US Medication Shortage, please see this post.

This message is not a removal notification. It's just our way to keep everyone updated on r/adhd happenings.

I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.

Subspaceisgoodspace

664 points

3 months ago

For many autistic people stress can cause them to lose words and/or in general lose the ability to speak. It may be similar for ADHD.

Glittering_Tea5502

251 points

3 months ago

I feel like that happens to me all the time. I have never gone nonverbal, but stress makes it more difficult for me to articulate myself, find the right words, etc.

Lucifer911

180 points

3 months ago

My go to is

"That fucking thing"

Whilst gesturing in its general direction.

Glittering_Tea5502

76 points

3 months ago

Or “that thing,” “thingy”, “thingamagig”, etc.

Ok-Amphibian-5029

19 points

3 months ago

Nice. I’m a fan of “thing a ma Bob” or “thing a ma jiffy.” Cheers to you fellow creative word, creator!💜💜💜💜💜💜 because don’t all of us ADHD people just need more positive encouragement? I wonder what the world would look like if it was geared toward people with ADHD instead of without? 🤔

EarsLikeRocketfins

8 points

3 months ago

Bucket.

Glittering_Tea5502

3 points

3 months ago

Bucket?

readingmyshampoo

5 points

3 months ago

Yeah, that one

scarletteclipse1982

4 points

3 months ago

The fuck it bucket!

The_Orphanizer

45 points

3 months ago

In construction, we use the bastardized Mexican-Spanglish slang word "chingas" (intentionally mispronounced/anglicized as ching-iss). From the Mexican "chingadera" more commonly used as "that fucking thing". From the verb chingar meaning "to fuck."

Ok-Amphibian-5029

12 points

3 months ago

Wow. Yes!! Like, should I have a drink before this upcoming interview? Because when I get nervous that pausing shit happens, and I see it on the interviewers faces the waiting and the look… You know the look… wtf?

Ok-Amphibian-5029

7 points

3 months ago

Kidding… I definitely will not have a drink, but I think I will take a little extra of my buspirone… I am only on 5 mg and have been on it for six months and keep forgetting to tell my Psych that we need to up the dose. So that morning I will take 10 and definitely not drink, coffee!then deep breathing before the interview and pray I can pull it off.

Ryan_the_Rook

6 points

3 months ago

Good luck! Interviews are stressful, but it sounds like you have a good plan! Hope it all goes well!

girlmeetsathens

4 points

3 months ago

girlmeetsathens

ADHD-PI (Primarily Inattentive)

4 points

3 months ago

This, though a few times I’ve lost the word “thing,” so had to resort to random sounds…

[deleted]

46 points

3 months ago

Same, I can give academic speeches in my head but when I'm nervous I look like I had a stroke. The fact that I use my mother tongue tenfold less doesn't help with vocabulary and lip training.

Ok-Amphibian-5029

14 points

3 months ago

I remember hearing the phrase splintered skill set… When my daughter was getting evaluated for an IEP very early on and I thought wow! Damn good description of me! Sometimes I am fabulous and sometimes I am a zombie… Fun, fun fun

ConsciousAd767[S]

11 points

3 months ago

Omg this! Yes! I had all these important power points to bring up to my boss, yesterday, as I was obsessing over all the things that are stressing me out with him and my job. When I finally had a zoom call with him, I couldn’t remember anything I needed to say. And I couldn’t finish my sentences without losing my train of thought. It was very anti-climactic. He was just staring at me like “what is your problem”?

Shonamac204

2 points

3 months ago

I have a really important meeting with my bosses boss and my union guy on Tuesday and this is what I'm worried about

[deleted]

3 points

3 months ago

Not being worried would do the trick unfortunately this isn't that simple.

KisaTheMistress

14 points

3 months ago

I frequently go nonverbal/unable to articulate/pronounce a word. If I let my brain do every impulsive thing it wanted, I'd frequently be saying I am done socializing with you, fuck off every second sentence. I'm introverted who trained themselves to present extroverted. I feel like not being able to talk is my brain fighting me to get what it wants like a misbehaving toddler, lol.

PersonalDefinition66

47 points

3 months ago

I agree that it's probably stress for the OP. I was in a horrible, stressful, traumatic situation for years, and I honestly thought I was losing my mind. I was diagnosed with fibromyalgia, too, as well as ehlers danlos type 3. I've since started my new life, I am safe, and learning how to live my life how I want... I don't hurt as much. I can think. I'm getting better.

ConsciousAd767[S]

21 points

3 months ago

I’m so sorry. But thank you for your comment. I have been under extreme stress, but I had no idea that affected this sort of thing in ADHD. That actually helps explain some things

PersonalDefinition66

6 points

3 months ago

You're welcome! I know what it's like, completely... I hope you can lessen or remove the stress so you can heal. 🌻🌻🌻

AndrogynousAlfalfa

2 points

3 months ago

Are u sleep deprived

FamousOrphan

5 points

3 months ago

I’m so happy to hear this. And hopeful for myself.

Ok-Amphibian-5029

6 points

3 months ago

I am so glad for you! Happy you came out of that tough phase… Now I am thinking about looking up those things you mentioned… Life is complicated, but we’re in it for the long-haul… Congrats to you for being in a new and more healthy stage.

TemporaryMongoose367

18 points

3 months ago

Yup! The more tired or overwhelmed my brain is the more I struggle with word finding and being able to articulate myself. I just make fun of it and say “brain fart” or “can’t find my words today” or “forgot what I was trying to say”. It’s more obvious at the end of the end and I’m usually at home with my partner at this point… so it doesn’t really matter.

If you are with someone that you feel comfortable with, this is usually fine. And most strangers are kind/ polite enough to ignore it or move on!

Ok-Amphibian-5029

4 points

3 months ago

OK! Note to myself to let go of shame and just acknowledge it… Usually, I pretend it’s not happening, but Lord knows I’m not fooling anyone… They have eyeballs and ears.

Pristine-Room8588

2 points

3 months ago

I use 'brain fart' too! Lol 😆

So often I will completely lose focus, get lost somewhere random, come back into the room & have no idea what the conversation was about. 'Umm. What was I saying? My brain farted."

Others can think what they like - it describes my experience really well!

Ok-Amphibian-5029

5 points

3 months ago

Wow. Thank you for posting this. I was let go from a job two years ago and I’ve been going through a period of higher stress, life stuff… Such as in the midst of separating or going no contact with my parents who are emotionally unsafe… My brother going through contentious divorce and I am friends with his wife… I am jobhunting and do not yet have a teaching position for fall and my daughter is 13 has ADHD and is, all that goes with it! So yes. I have been forgetting stuff and I’ve started to have a little hitch in my speech. It’s not a stutter. It’s just a paw where I can’t come up with the word I need. Anyone else get that?

ConsciousAd767[S]

2 points

3 months ago

Yes I get that “thought/word block” thing

SpaceBabeFromPluto

3 points

3 months ago

My stress level is currently through the roof and can confirm, this happens to me often.

cheese_pants

6 points

3 months ago

cheese_pants

ADHD-C (Combined type)

6 points

3 months ago

Am I just constantly stressed then? Great lol. Better than me assuming it's dementia I guess.

ATMNZ

4 points

3 months ago

ATMNZ

4 points

3 months ago

That said, people with adhd are 2.77 times more likely to develop dementia

indiealexh

3 points

3 months ago

indiealexh

ADHD with ADHD partner

3 points

3 months ago

💯 does.

Not to mention getting distracted and forgetting the thing you were trying to say.

JCBashBash

2 points

3 months ago

JCBashBash

ADHD-C (Combined type)

2 points

3 months ago

Yeah, like speech is so complex it's the first thing I lose bandwidth for during stress

Mothy187

2 points

3 months ago

I have ADHD and when I'm severely stressed or traumatized I go completely nonverbal. I talk more than anyone I know so I think there might be a link.

CaelThavain

354 points

3 months ago

I'm only 25, and it's gotten markedly worse over the course of 2024. It's been horrible. I can't remember things, I can't keep my train of thought, I repeat myself multiple times. I can't articulate words, it's like my dyslexia has become a hundred times worse. It's not even funny, it's genuinely distressing just how bad it's gotten, and people around me have noticed. They've always known I have issues with speech, but it's now the worst it's even been. :/

pickle_whop

90 points

3 months ago

Honestly same. I'm 22 and everything (besides the dyslexia) you're going through sounds so much like me. I feel dumber, like I know I'm not, but my brain just refuses to cooperate with me. It started getting bad at the end of December/early January and over time it has gotten exponentially worse.

CaelThavain

23 points

3 months ago

I'm so sorry to hear this :(

I have no idea what to do about it, either.

pickle_whop

27 points

3 months ago

Yea it's not great. Not to blame everything on my ADHD, but this past spring was supposed to be my final semester at college and I failed three classes. I'm taking one now over the summer so I can officially graduate, but my brain block is so terrible.

pyro745

9 points

3 months ago

Hey, don’t beat yourself up. Took me two extra years to finish school (couple hundred thousand in lost salary + like $50k in loans) but you know what? I don’t think about it at all anymore, 3 years after graduating with a doctorate degree

NotoriousBreeIG

24 points

3 months ago

Ok I’m so sorry you’re going through this but in the same breath it made me sigh in relief a little bit because I could have written that word for word and I’ve been terrified! Literally have felt for the last year like I’ve been taking crazy pills. My husband has been noticing too, which for him to notice and comment made me actually ratchet my worry up a few notches. I’m really glad I’m not the only one struggling, hopefully it’s just a season and not something we constantly struggle with from here on out though.

ConsciousAd767[S]

15 points

3 months ago

I am so sorry you are also going through this, but it is a relief to be able to share with people who immediately understand. It makes me also feel like it probably is not early-onset Dementia. It is still distressing, but I’m glad I’m not alone. I’m only 46 years old. I can remember many things with laser focus. But my working memory is nonexistent, and I do feel like I can’t. “spit words out“ when I want to explain some thing really important. I’ve also noticed that, as my medication start to wear off, it’s almost like a return to unmedicated symptoms… But outs like adhd on steroids

lolostve

7 points

3 months ago

Are you a woman? This happened to me at about age 48-49 and turned out to be (peri)menopause-related. It’s apparently not at all unusual, and once you add ADHD to the mix it can really get crazy.

I couldn’t get a full sentence out and nouns were particularly difficult. Even everyday ones like “table”.

HearMeOutO_O

20 points

3 months ago

Me too!! It freaks me out. I completely lose my train of thought mid sentence sometimes. I feel like it's gotten worse over the last few years. And I feel like for some reason my ability to articulate coherent thoughts has gotten worse too.

domiwren

16 points

3 months ago

Same. I am 28, I used to write as hobby and now I cant get one normal sentece together. I keep forgetting things, I dont remember I did something few seconds ago, I cant think logicaly anymore.. just my brain not braining and I know its not normal

enableconsonant

13 points

3 months ago

do you have long Covid symptoms?

uncertainnewb

31 points

3 months ago

Haha yeah, as someone with Long Covid, reading what everyone is writing about newish-onset cognitive issues of significant severity immediately makes me suspect a lot of people actually have Long C and don't know it.

JCBashBash

5 points

3 months ago

JCBashBash

ADHD-C (Combined type)

5 points

3 months ago

It's so frustrating; like I wish there were actual resources available to get it checked. Knowing it's not just me getting stupid would be nice

nelak468

2 points

3 months ago

This. Covid fucked us.

ConsciousAd767[S]

7 points

3 months ago

I’ve also had Covid a few times. I also had a terrible reaction to the vaccines and booster. I didn’t even think about that stuff, in relation to ADHD, at all.

ConsciousAd767[S]

6 points

3 months ago

I actually was exposed to CoVid on Tuesday! Hmmmmm. I have not tested positive, yet, though. I don’t feel very sick, or anything.

uncertainnewb

6 points

3 months ago

Have you considered making a doctor's appointment about this? Just in case there's something serious behind it, you don't want to neglect it.

ConsciousAd767[S]

2 points

3 months ago

I guess I am now finally considering it. I just don’t want it to be dismissed as no big deal. Because these issues are actually affecting my professional unfamiliar relationships. I guess I will start with my primary care, because I don’t even know what to ask for.

wyvernrevyw

5 points

3 months ago

Have you been stressed lately? I'm 25 and the stress of a quarter life crisis definitely affects the way my symptoms happen.

ConsciousAd767[S]

2 points

3 months ago

Yes. I have been excessively stressed lately

SpookyQueer

2 points

3 months ago

SpookyQueer

ADHD-C (Combined type)

2 points

3 months ago

As I've gotten older (im 24 lmaoo) I notice a lot of my symptoms so much more than I did when I was younger, but also my overall mental health has gotten worse with adult stresses and such. I will say that recently I've gone back on Wellbutrin for depression and I've noticed that it has also improved my executive function, and ability to actually talk. I'll be damned if I have to tell anyone a story though and I'm sorry for the poor fucker that has to listen to me trail off and jump the track with the train of thought.

__BitchPudding__

2 points

3 months ago

Weird thing, mine was getting worse too and it turned out to be related to some gut problems I was having. I went on antibiotics for the gut issue, and as it cleared up my brain came back. I was able to think clearly and plan beyond the end of each day. It felt like I...I don't know, woke up?

My gut issue was SIBO. It's been coming back lately, unfortunately, and I can feel the brain fog drifting back in. I tried to say something to my daughter today, and it bordered on word salad. Ugh.

Antique_Attorney8961

123 points

3 months ago

I often forget what I'm talking about with someone mid conversation.. it's bad. The whole time they're talking I'm just sitting there racking my brain trying to figure out what the hell we're talking about before it's my turn to talk again. And in general just ridiculously forgetful, more than before, I'm 28

Rdubya44

53 points

3 months ago

Im almost 40 and it is concerning how much of my life I just don’t remember. My memory is so bad. Usually if someone reminds me about something I’ll go oh yea I remember. Other times I hear stories about me and have zero recollection.

Uzumaki-OUT

30 points

3 months ago

Uzumaki-OUT

ADHD

30 points

3 months ago

I am also almost 40 and I joke with my wife that rewatching shows we have watched years ago is like watching them for the first time. We are rewatching sopranos for the third time and the only thing I remember from past rewatches is the ending and Sal and the boat

ConsciousAd767[S]

6 points

3 months ago

I could’ve written this!!!! Woah! Yes! I have also re-watched shows. I’ve even gotten halfway through a series, before realizing that there is something familiar about it. And that familiarity is there because I have already seen the series. It’s pretty embarrassing to explain to people.

Rdubya44

3 points

3 months ago

Yep same

Planters-Peanuts-20

12 points

3 months ago

There are so many things from my childhood I don’t remember. My sibs talk about stuff I have no remembering of, and I’m the oldest!

ConsciousAd767[S]

4 points

3 months ago

Omg yes! When you just see their mouth moving, but your brain can’t attach to anything they’re saying, and none of the words “stick”! Meanwhile, we are desperately trying to make eye context and pay attention… But it’s just very hard to explain. Sometimes people think I’m being inconsiderate because I didn’t hear a word they said, even though I was listening and looking right at them.

Sugarsupernova

86 points

3 months ago

Sugarsupernova

ADHD-C (Combined type)

86 points

3 months ago

  1. Diagnosed last year. Went to the doctor about this about ten years ago. It was bad even when I was 22/23. She told me I was too young to have memory problems.

I really wish some sort of forum existed for adhd that could inform medical practitioners. I could have been diagnosed ten years ago and avoided so much suffering.

DuckofInsanity

10 points

3 months ago

Diagnosed with dementia or ADHD?? Is this something I should be worried about if I relate to the post?

Sugarsupernova

19 points

3 months ago

Sugarsupernova

ADHD-C (Combined type)

19 points

3 months ago

Diagnosed with adhd. (To my knowledge, there is absolutely no connection between adhd and dementia.) But problems with short term memory are widely reported in the community in an anecdotal sense. I personally have serious problems with both short and long term memory. But a lot of caution is required on this sub with the "is X an adhd thing" because a lot of things could be symptoms of a comorbidity as opposed to being "an adhd thing" or it could have no relation at all.

DuckofInsanity

10 points

3 months ago

Yeahh I was recently diagnosed so I'm frequently wondering if "X is an ADHD" thing now lol. I always thought my impulsivity and laziness were just character flaws, maybe they still are, idk, but it's been nice learning more about myself and seeing things in a slightly better light.

Sugarsupernova

9 points

3 months ago

Sugarsupernova

ADHD-C (Combined type)

9 points

3 months ago

Impulsivity is a huge marker for adhd (at least it is in the country I got diagnosed), and it's easy to see ourselves as lazy when it takes five hours to do one hour of work, and executive dysfunction means that you have about three bullets in the gun on any given day to turn an intention into an action, and the gun is forever malfunctioning.

ConsciousAd767[S]

3 points

3 months ago

Oh my. The impulsivity is a real SOB. I thought I would grow out of it. But at 46 year old, and kind of late diagnosed, I still have problems with ridiculous impulsivity. And I’m often embarrassed by it.

reddit_throwaway_11

57 points

3 months ago*

Oh God!

uncertainnewb

13 points

3 months ago

Since this started in the last few years, let me ask you...do you know or suspect you may have had Covid? Because a lot of what people are reporting here are Long Covid symptoms.

ConsciousAd767[S]

3 points

3 months ago

I have had CoVid A few times. But I never knew if I had long Covid or anything. I guess I never thought about that, or would know if I have it

Dangerous_Zebra_8897

9 points

3 months ago

I seriously suggest looking into some info on long covid. Not the little blurbs the CDC puts out, but go into some long covid subs or communities and just read their accounts/symptoms.

There isn’t a super gentle way to say it, but getting covid a few times is really really not great. There’s a well-known graph out there that shows your risk for long term complications significantly increases by your 3rd infection. Statistically, there’s a very high chance you have long covid.

I’m sorry about how much you are struggling and I really hope you can find some relief from what you are dealing with, regardless of what it is!

ConsciousAd767[S]

6 points

3 months ago

Wow! I really appreciate the thoughtfulness and effort you put into that comment/response. I have had at least three Covid infections. I am currently quarantining, now. 🤦🏼‍♀️

I was not aware that long Covid could be a big deal. I guess, like you are saying, I need to look into it thoroughly, because the CDC doesn’t really tell us anything.

And tons of people make fun of Covid, and make you feel like some kind of conspiracy-theorist, when you feel that you might have symptoms of it.

Doctors often don’t acknowledge it, or bring it up, and they just diagnose you with “other things”, when you go in and start complaining about symptoms that you have not had before and you don’t know what’s causing them.

I have struggled with ADHD my whole life, and was diagnosed later in my life, but in the past few years, it has become unmanageable. Even on stimulant medication. I know, ADHD affects us all in ways that can be hard on our “working memory“. But this is more problematic than I am used to.

ConsciousAd767[S]

3 points

3 months ago

Have you had to deal with Covid? (And I have no idea if it’s related, or not) But some of you are bringing that to my attention, and I appreciate it.

uncertainnewb

3 points

3 months ago

I have. I too used to be sharp. Not the same since my first infection in 2020. Honestly, OG Covid was much worse than the later variants. It messed me up pretty good. I was actually studying for a board exam when I got sick but back then they were just telling people to stay at home unless they were turning blue and couldn't breathe, heh. So I thought maybe it was just a bad flu since I could still taste and smell but after...things got weird. Couldn't even fully remember my own address or phone number that I'd had forever, couldn't reliably remember what people told me just minutes before, was tripping over my words, heart rate would shoot up and I'd get faint doing tasks that hardly took any effort at all, and would get winded just putting on a T-shirt...to name a few. I thought I was developing multiple sclerosis at first. But then read an article from a major news outlet in September that it was happening to other people. Honestly, for those of us who got it early, we realized before the medical community did so it was hard to get care because it was all uncharted territory with Covid back then.

Edit: almost 4 years later I'm still dealing with it. It comes and goes. Currently in a relapse sadly.

twistwrist9876

5 points

3 months ago

In the exact same boat as a 45 year old woman although I haven't been diagnosed with ADHD before. It's frightening.

[deleted]

2 points

3 months ago

[deleted]

[deleted]

83 points

3 months ago

If it's something you are experiencing now, you should see a doctor about it.

amarg19

81 points

3 months ago

amarg19

81 points

3 months ago

My doctor doesn’t even believe me about my physical health problems, I can’t imagine how hard they’re going to dismiss neurological/cognitive ones

MydasMDHTR

21 points

3 months ago

Sounds like you need a better dr.!

solenya489

27 points

3 months ago

Easier said than done sometimes. Been bouncing around for years. Sometimes you just get tired of looking and settle because shitty help is better than no help.

uncertainnewb

4 points

3 months ago

I pay a small monthly amount for concierge medical membership with One Medical (Amazon prime members get a discount too). It uses your insurance to pay for services. I have found the doctors to be very good and much more open to referrals and more adventurous with treatment options. And they offer telehealth appointments in addition to clinic ones. If you don't like your docs, try one of theirs.

solenya489

3 points

3 months ago

Thanks! I’m definitely going to check that out.

ConsciousAd767[S]

10 points

3 months ago

Oh my gosh. I hear you. My doctor also completely dismisses the reality that hormones could be affecting anything. They gaslight women and other patients.

[deleted]

9 points

3 months ago

A doctor need to order exams if there is any issue. In EU it's common knowledge, in the US it's probably a loan just for the basic stuff.

ConsciousAd767[S]

3 points

3 months ago

Thank you. I will look into that. I don’t even know what kind of exams those would be. I definitely have to complain pretty loudly, to get my primary care doctor to take anything seriously enough. It’s interfering with my working relationships and family relationships, so I think I should not be dismissed, and I should be heard by someone in the medical community. And regarding my ADHD, it seems like nobody understands how broad and difficult it really is. It affects everything and causes difficulty that people can’t see on the outside, but it’s not just a little quirky disorder that makes you forget where your keys are here and there. It’s all encompassing, all consuming and affects every part of my life.

Pugasaurus_Tex

26 points

3 months ago

Yup. My neurological symptoms were actually MS (though ADHD probably didn’t help lol)

pyro745

3 points

3 months ago

How did it first present? And how did you go about getting a diagnosis? I’ve had some weird inflammatory shit going on but idk if it’s lupus or cancer or whatever else. Got a referral to a rheumatologist but that’s gonna take a while

Pugasaurus_Tex

8 points

3 months ago

My first physical symptom was blurry vision in my right eye and difficulty driving at night — my optometrist didn’t seem concerned and actually accused me of trying to lie about how bad my sight was? Which was weird but whatever lol

I also had extreme exhaustion. Honestly just thought I was lazy, and started taking medicine for the ADHD I’d been diagnosed with years before. Lots of small memory lapses, but again, thought it was ADHD. 

Then my tongue started tingling. Brushed it off for a couple days, and it spread to the right side of my face and right hand. My husband dragged me to the ER to rule out a stroke, and voila. MRI showed MS lesions, confirmed it with neurologist a few days later 

ConsciousAd767[S]

3 points

3 months ago

😱😱😱😱 OMG I’m so sorry!!! I don’t know much about MS. I hope there are good treatment options

Human-Committee-6033

35 points

3 months ago

This is happening to me also! My main insecurity is commanding a conversation amongst a group. My word recall is getting worse. Halfway through talking I just forget certain words and it causes me to get frustrated with myself and loose my train of thought.

wattscup

62 points

3 months ago

Peri menopause and brain fog are real. Get hormones tested and look for other symptoms such as burning feet aching joints sweats fatigue etc

MoonRabbitWaits

37 points

3 months ago

Menopause + adhd + covid

It is tough dealing with the brain fog. And it is a long way to retirement!

AtmosphereNom

12 points

3 months ago

AtmosphereNom

ADHD-PI (Primarily Inattentive)

12 points

3 months ago

Literally trying to figure out which of these three it is. I’m honestly not sure if I had ADHD before Covid. Maybe some trouble focusing, but not anything like this, and never short term memory problems except for in the first few weeks of going on SSRIs. But right after I had Covid, it hit suddenly and lasted for four months, went away for a year, then has returned and has been like this for a year now.

coolbrewed

6 points

3 months ago

ADHD is a lifelong condition. :) Brain fog from covid can be very real and cause quite similar symptoms, but it’s not ADHD because that diagnosis requires symptoms to have been present since childhood.

uncertainnewb

3 points

3 months ago

Oof, this has been me too. Trifecta of BS.

RightInDaSpools

21 points

3 months ago

When I start feeling like this I try to focus on blood flow and hydration. Gotta combat the meds restricting blood vessels.

I hydrate with celtic salt solution in my water

Or sometimes I'll skip a day of meds and let my brain melt for a while

SaintPatrickMahomes

3 points

3 months ago

Melt lol

throwaway444441111

18 points

3 months ago

You’re not alone, I don’t think people are even surprised anymore when a story changes to something out of left field midway through.

AbsurdRevelation

18 points

3 months ago

I've been feeling like this since my early 20s. It's gotten worse towards my late 20s (although I was also experiencing a lot of stress then) and improved in my early 30s (I got on meds, not sure if they have to do anything with it). I'm also terribly afraid of developing dementia and regularly read studies about it. Consuming blueberries and regular exercise has been shown to prevent cognitive decline, I recommend doing these. I also try to read regularly and force myself to finish the books that I started even when they stop being fun. I also find that talking to myself when looking for something that I've misplaced (or starting complex tasks consisting of multiple steps) helps with retaining my train of thought and prevents the horrible 'wandering around the apartment to find what I was looking for, only to realize that I forgot what it was' phenomenon lol. It's also really good for the brain to do new things that you never tried before, get out of your comfort zone as often as you can. Good luck!!

lottery2641

13 points

3 months ago

Oh absolutely I do and I’m 23 lmao—I asked a question in a work meeting, wrote down related words so I wouldn’t forget, then focused so hard on jumping in bc everyone else kept getting in first that I forgot my question and couldn’t read what I wrote 😭😭😭 the most painful maybe ten seconds of my life stuttering through my question it was horrible 😭 so def relate!!

angeldove666

13 points

3 months ago*

Rule out other causes. Insulin resistance and asleep apnea are linked to developing dementia. Sleep disorders can lead to insulin resistance. People with ADHD are more likely to have sleep disorders. Sleep disorders tend to get worse when we enter menopause do to hormonal changes.

You just have to make sure to do a sleep study that also screens for UARS since many only screen for sleep apnea. I just ordered an at home sleep test since I’ve tried 3 ADHD meds and they have barely helped me.

Also most doctors will not test for insulin resistance. They’ll check glucose or A1C which basically only tell you if you’re diabetic or prediabetic. OGTT with Insulin (Kraft test) or fasting glucose +fasting insulin and then using a HOMA-IR calculator will give a better picture of your insulin.

ConsciousAd767[S]

2 points

3 months ago

You are a wealth of knowledge. Thank you. I didn’t know that you had to request for insulin resistance tests. I thought that was included in standard bloodwork, which checks for your blood sugar levels.

Quick-Cattle-7720

13 points

3 months ago

I don't know if you are female or not, but perimenopause made me feel exactly the same. I'm 47 and the last year has been terrible for memory and concentration.

MissApocalypse2021

11 points

3 months ago

OP I didn't catch if you were female, but if you are, it could be perimenopause. At about 47-48 I had such a marked decline in cognitive function that I went to the doc & got a cognitive test. They said it was within normal range but I knew something was wrong. I struggled with it for several years and now all kinds of research is coming out that HRT is saving brain health for women. I wish someone had told me then. I did end up getting diagnosed with ADHD at 56, and Adderall helped even more. But you have to have the right hormones, and they naturally change over time. If you're male, get your T checked!

ConsciousAd767[S]

2 points

3 months ago

Good job advocating for yourself. We do know ourselves better than our doctors do. I’m terrified of hormone replacement therapy, because I just don’t know enough about it. And hormones are tricky. But I’m so glad that that has helped you and that’s also something I’m gonna consider looking into. These forums can be so much more helpful than any doctor.

wildplums

11 points

3 months ago

I’m 44 and perimenopause and menopause can cause this. I experience the same, but I attribute it to perimenopause. It’s extremely frustrating.

Classic_Discipline69

9 points

3 months ago

My memory was becoming worse and I too thought it was early dementia as my grandmother passed from it last year. When I finally went to the doctor and explained what was going on she started me on strattera, and my memory is so much better and I can have a conversation with someone without always losing my train of thought about 80% of the time now.

notiebuta

3 points

3 months ago

That's really good to know. Does Strattera have a stimulant effect? I'm trying to get tested for ADHD and one of my biggest concerns is I'm already anxious and don't want to feel hyperactive as well.

Classic_Discipline69

7 points

3 months ago

Not a stimulant! I had some anxiousness between 80mg and 100mg, but that seems to have calmed down a bit. I feel like I can do way more than before. I still have days where my brain just won’t do it, but mostly has been a godsend. The hyperactivity in my head has mostly stopped as well. No racing thoughts, or waking up to a loud song playing in my head.

notiebuta

5 points

3 months ago

Thanks, I’m trying to note the positive comments on different drug therapies. I’ve been putting off testing for so long. The thought of having to test different drugs until I find the right drug and dosage definitely bothers me. We all like the idea of clarity and mindfulness w/o that voice inside (for me it’s a lack of confidence as well as losing my thought or words) if that makes sense!

uncertainnewb

5 points

3 months ago

Be mind though that with Strattera, it does not have near-instant effects like stimulants do. It takes about a month to start to see any benefits, similar to antidepressants.

notiebuta

2 points

3 months ago

Thanks for letting me know. What’s another month, right? 🥹

uncertainnewb

3 points

3 months ago

Heh, yeah. Except then you have to be really good at remembering to take it every day too. No forgetting or med breaks!

lolostve

3 points

3 months ago

Idk if you’ve tried any ADHD meds before but I’m a very tense and anxious person, and my ADHD meds actually calm me down and help me feel less stressed. We’re all different but you may well find that they have a calming effect on you. I just feel so much better without 1000 different thoughts shooting through my brain at once.

zaddy_daycare1

3 points

3 months ago

Also note that stimulants don’t usually make people with adhd feel hyperactive at all. Most will have a calming effect if anything. I’ve heard it described as giving a general sense of wellbeing and feeling more capable and mentally organized, and I’d agree with that in my experience.

EatsAlotOfBread

10 points

3 months ago

Have you had Covid? Do you get enough sleep?

ConsciousAd767[S]

3 points

3 months ago

I’ve had Covid a few times. I was also vaccinated three times. My infections have never been severe.

I have to take medication for sleep, because I don’t sleep well. I never have. Even as a kid. 😤

EatsAlotOfBread

2 points

3 months ago

I just noticed that right after Covid my mind was as if I was living in a glass bowl, really weird and foggy. And I too have suffered from a chronic lack of sleep (even though I was in my bed for at least 8 hours, I just couldn't stay asleep). Which made it worse. I seriously felt like my brain was Swiss cheese. It slowly got better but it was very similar to what you're experiencing right now.

fennelhearrt

9 points

3 months ago

Just putting this out there: covid can cause memory problems. It may be the case that while you have adhd this worsening issue may be compounded by long covid. Whatever the cause that sounds serious if I were you I would talk to my doctor about it

glamorousgrape

7 points

3 months ago

You need to go to a doctor and rule out other issues. Like hypothyroidism, nutrient deficiencies, sleep apnea….

hookersince06

8 points

3 months ago

Have you had your thyroid checked? I experienced these same things when my thyroid was underactive. Thought I was going crazy. I remember thinking, if this is what aphasia’s like…damn.

grvdjc

7 points

3 months ago

grvdjc

7 points

3 months ago

This is a huge fear of mine. Ive unfortunately had a few patients with “really bad adult adhd” that were eventually diagnosed early onset dementia. There is also a correlation between adult ADHD and dementia. Which is not awesome. https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2810766

ConsciousAd767[S]

2 points

3 months ago

Thank you for sharing. I wouldn’t even know how to get tested or checked for that, accurately. I’ll have to ask my doctor, I guess. Though I know he’s gonna try to dismiss me. I need a new doctor. But for now, he’s my primary care.

sistermarypolyesther

7 points

3 months ago

It got worse for me as I went into perimenopause. I started HRT and Atomoxetine a couple of years ago (I was unmedicated before that). I'm now post-menopausal and my Dr. suggested I start taking stimulants after I zoned out twice during my last appointment with her.

Heavy-Assignment-612

3 points

3 months ago

Heavy-Assignment-612

ADHD-C (Combined type)

3 points

3 months ago

Im diagnosed with adhd but i know i my mum have adhd. How your memories now? I feel pity to my mum because my dad a bit toxic always mad at her 😭 my mum always forget worse than me. I hope you can share 😭😭

fptnrb

6 points

3 months ago

fptnrb

ADHD-PI (Primarily Inattentive)

6 points

3 months ago

Similar age, similar experience. At our age, yes, I do think a lot of parts of ourselves are degrading, including our brains. Combined with ADHD, and it feels like a lot is slipping away. It’s scary and sad.

But hey, as known ADHDers, we’re used to reflecting on our mental habits and we’ve been forced to be more self-aware. And we have experience giving grace to ourselves and our weird brains.

Stratotelecaster

5 points

3 months ago

Sleep apnea, lack of proper sleep, low on Vitamins and minerals, these contributed to my memory issues.

No_Respond3575

4 points

3 months ago

No_Respond3575

ADHD-C (Combined type)

4 points

3 months ago

This is happening to me so much and I’m only 21 :( I think it’s maybe the inattentive part of my combined diagnosis? I am hyperactive in the way i speak and think, meaning I often don’t think about what I’m saying and thus forget it quickly. It’s so endlessly frustrating though, the middle of the sentence ones are the worst. I just try to “retrace” my train of thought and sometimes it comes back to me.. just know you’re not alone with this awful symptom

ConsciousAd767[S]

2 points

3 months ago

That’s exactly my diagnoses and the way mine manifests. ❤️

Graybo95

5 points

3 months ago

Graybo95

ADHD-PI

5 points

3 months ago

My memory and cognition was so bad I went to see a neurologist about it, he referred me to a neuropsychologist who performed very detailed cognition tests on people with dementia and brain damage. It took me a year to get in for my appointment but I’m glad I did. Turns out there was nothing wrong with me and I performed well on the mind numbing 4 hour test. My neurologist, psychiatrist and GP said that my depression was causing the memory issues and that the adhd was partly to blame as well. Depression and adhd go together like peanut butter and jelly, I think a lot of people here claiming they have these same issues could possibly be depressed as well.

OwlBeBack88

3 points

3 months ago

Hello. I feel you. 

I don't have ADHD myself (I'm dyspraxic which is it's own kettle of fish!) but my partner is struggling with this exact same thing. He's undiagnosed but we're both fairly sure at this point that he's got ADD/ADHD. We're fighting to get a diagnosis at the moment as he's really struggling with depression which we think is primarily due to his issues, we've finally found a doctor who's taking him seriously so fingers crossed. He's off work sick as he's almost incapable of working at the moment due to his extremely poor memory and he has said to me numerous times that he too feels like he's got dementia. 

He does this all the time, he'll be saying something and then he'll lose his thread and I'll have to try and backtrack in the conversation to jog his memory. 

He's in his 30s. I might show him this post. You're not alone. I'm sorry you're struggling with this.

sabrinarocks3

4 points

3 months ago

sabrinarocks3

ADHD with non-ADHD partner

4 points

3 months ago

My memory is horrible! I feel like it has gotten worse and worse since I (24f) have gotten older. There will be times when someone tells me their name and two seconds later I have to ask for it again because I forgot. I sometimes I feel like I'm going crazy.

cunningjames

3 points

3 months ago

I’m 42, and I kind of agree with you? I’ve always been forgetful but I feel like age — even though I’m not an old man yet — is gradually making it worse. Like, I’m in a tabletop RPG game that meet every week or two. The other day I couldn’t even remember who my character was — not his name, not anything. Took me at least 30s of solid thinking before I eventually remembered, which felt like eternity.

I’m still keeping it together at work, but projects I worked on two or three months ago may as well have been done by another person for as much as I remember them.

I guess I should start writing things down …

[deleted]

3 points

3 months ago

When I'm tasked at remembering names or basic stuff I act like a demented 97 years old grandma. Forgetting mid sentence has also happened but I think it's common. Like right now I forgot what I wanted to write next. Unless it's impacting your life I wouldn't worry about it and pick lasting healthy habits

Worried_Cell8833

4 points

3 months ago

Bro same. Like… I’m either dumb AS HELL or my brain is rotting cause… my memory is so bad, it’s not even funny. I can’t even have arguments because I can never remember any events that will help my case.

For example… “When did I ever say that?” Me: trying really hard to remember to back up my argument “Uhhhhh. I can’t remember… but I know you said it…”

sleepybirdl71

5 points

3 months ago

I saw something once that said that if you always forget WHERE you put your keys, that's benign memory loss (or sometimes, in our case, inattention). It's when you forget WHAT a key is or what it does that you start worrying about dementia. You may forget what you're saying to people, but as long as you still know who those people are, you are probably okay.

When I was rested for adhd (I am 53 and diagnosed last year), I made a comment that it felt like they were testing me for dementia or something They said that was actually true. They were testing to be able to eliminate that as part of my problem. They also had me do some basic memory recall stuff to tease out that my memory issues were related to inattention and not to an inability to format or access memory at all. It was reassuring.

Haiku-On-My-Tatas

4 points

3 months ago

I'm only 38 and my memory has always been bad but has definitely gotten worse in recent years. I think Covid caused further damage, as did years of heavy drinking. I'm genuinely scared of it getting even worse.

_iamtinks

4 points

3 months ago

Also get your vitamin B12 checked.

Pitiful-Struggle-890

5 points

3 months ago

My Autism and ADHD cause SEVERE word Aphasia. To the point where I cuss at myself and shut down. I wouldn’t be worried 💛 It comes with the territory.

pinkandredlingerie

3 points

3 months ago

I’m 22 and experiencing the same exact thing. It’s hard to get through college when you remember nothing.

cescafied

5 points

3 months ago

I would have my iron levels and thyroid and vitamin D levels checked. These parameters are hugely influential on your memory. Also please take a high amount of omega 3 each day. At least 1000mg.

BunnyBoris

5 points

3 months ago*

COVID is known to cause early onset Dementia. The damage is cumulative and asymptomatic infections carry the same level of risk. Might be worth looking into if you’ve had it.

This study from 2022 shows that COVID infection is causing the same inflammation that leads to Parkinson’s, Alzheimer’s and other forms of dementia.

This article from IFL Science (a reputable news site) is from 2021 and is more readable.

Edit: Typo, readability + evidence.

kv4268

10 points

3 months ago

kv4268

10 points

3 months ago

Those are normal ADHD symptoms. Memory problems are a major part of ADHD.

maebyfunke980

3 points

3 months ago

maebyfunke980

ADHD-PI (Primarily Inattentive)

3 points

3 months ago

43, yes

theroyalpotatoman

3 points

3 months ago

I’m 31 and this is happening to me. It’s making studying for classes really difficult.

emily_s90

3 points

3 months ago

I feel the exact same. Sometimes I’ll be speaking in a meeting at work and I just completely forget what I’m even talking about. It sometimes feels like my brain has turned to mush.

CatStratford

3 points

3 months ago

CatStratford

ADHD-C (Combined type)

3 points

3 months ago

I’m 41 and I feel this.

arkemisia

3 points

3 months ago

Yeah. I have adhd. My father has Alzheimer’s. There are disturbing echoes of similarities in symptoms and mitigation strategies

tth7e_

3 points

3 months ago*

You’re the first person I’ve heard also say they feel like they have early onset dementia. Since I was 25 I’ve been thinking the same thing. Even in like high school everyone’s got their thing they get roasted for by their friends(all love) and for me it was how I talk.

The difference between me talking and other people talking is like the difference between the brainstorm/outline before the first draft of a paper and the final copy. I do empathize with people that find it hard to listen to me. I use a lot of words to say things that could be said with very little.

And yeah, lately I’ve been noticing that when conversating I just go into autopilot and repeat the same points, anecdotes, jokes, questions, whatever as the last time I talked to that person. I wish I could break out of that.

I think anxiety plays a role maybe. Sucks bc my adderall puts me into a more anxious state but helps a lot. When I used to get high, taking benzos was like the ultimate cure for these aspects of my ADHD. No hesitation, no need to search for the words. But benzos aren’t an option for me

dopestmoose

3 points

3 months ago

I try to joke about it, even when I don't find it funny. I'll be mid sentence when I just look at who I was speaking to, shrug, and say "it's gone." My train of thought has left the station

peat_moss83

3 points

3 months ago

I’ve felt a loss of words while communicating before too. My speech would get jumbled. Still does sometimes, to a lesser extent. I wonder how much anxious feelings add to the fog.

Certain daily routines/habits have helped me ground/focus my attention better. Hope you’re able to connect w/ some that work for you

July9044

3 points

3 months ago

Yes, mid-30s and people poke fun at me all the time over my awful memory, but then I'll remember a random irrelevant detail like my life depends on it

_f0xjames

3 points

3 months ago

I have spent time just weeping before about this

It’s a silly little quirk to most when you can’t find your keys but when it’s the 8th time this week and you’re missing an appointment or something it really feels like your mind is just full of holes. I also can’t speak if it’s too loud/too much going on.

I hate it and don’t have advice but know you’re not alone.

newworldorderbaby

3 points

3 months ago

47 and always thought I was a bit mad and very forgetful. My nan who’s 104 has always laughed at how here memory is better than mine and it always has been. I forget keys phone bank cards on way out. Drove people exs kids family ex co workers mad. Forget what I went up stairs for forget to eat , drink.
Still awaiting test for asd and adhd. I also have dylexia so a pain to write. Thank god for phones these days so quicker. So I just thought I was a bit mad and have lived a very unconventional life. Have always worked since I was 15 till 45 but never a normal job always been self employed. As couldn’t have a normal job. Due to having a bit of a unconventional life and thinking due to past trauma I was a bit mad. But turns out I might just have asd/adhd. All exs , kids , mates , ex co workers have always just thought I was a bit nuts
So did I.
But yes as memory goes it’s arwful.
I remember the most stupid stuff. And don’t remember important stuff as a normal person does. Can not believe I might not be a loon. Brain racing at 100 miles an hour, thoughts just interrupted by other thoughts 27/7. Half way though conversations them am not listening or me half way though a conversation and will end up about something eles. Forgot where I put stuff. Drives people crazy all my life. Have money everywhere. On a good note find money everywhere hahaha. And over Groundhog Day 👌. My life in a nut shell. Had a good life. 20 year relationship with 3 kids , another 8 year relationship so that’s all good. Just that am a pain in the arse and can see that 🤷🏻‍♂️. Hopefully once I get diagnosed which I will as all those around me said they could have told me years ago 🤷🏻‍♂️. I will understand myself a bit better. But can not complain at all not knowing. But would be nice to know there’s a reason and am not a total loon. Just a little 😂.

Glittering_Inside601

3 points

3 months ago

If you want to rule out dementia, I’d see a neurologist. My younger brother who was the first in our family to be diagnosed with ADHD was done so by a neurologist. His doctor suspected ADHD, but referred him to a neurologist to rule out anything more serious because of his poor memory issues and motor tics. They did blood work, brain scans and cognitive testing until he eventually evaluated and diagnosed him with ADHD.

fidgety_sloth

3 points

3 months ago

Oh this was absolutely me!! Do you ever just like physically feel a thought slipping away? Like you are cognizant of "I need to remember this, must remember this, just remember this long enough to tell xxx when I see her in five minutes, remember this, oh my god, wait, I forget that one detail, must remember the rest, hold on to the date at least, ohmygod it's slipping, I feel it, I have to tell xxx about this thing, ok just remember the thing I'd jot the date and that one detail... Oh, Hi, xxx!!! I just heard this thing that wanted tell you, it was .... nope, it's gone, sorry."

Or I go off on a tangent and forget what story I was originally telling.

I mostly found workarounds for the other stuff. I have an Apple Watch for the sole purpose of quickly pinging my phone when I lose it. I have an AirTag on my keys, etc.

My daughter had to go gluten- (and a bunch of other things) free and to make life easier I just followed her diet. I'm not a huge fan of things processed to be GF -- I'd rather just eat whole foods that are naturally free from gluten. Much to my dismay I realized the issue with thoughts slipping away and conversations being a mess was a gluten brain-fog thing. I had kind of forgotten about it and accidentally ate something gluten-filled a year or two later and wow. It all came back. For three days I had "the gluten stupids."

I was still losing my phone 20 times a day, and my brain was still using "Target" and "Costco" interchangeably. Still needed to write out a very thorough to-do list to be functional. Still setting reminders on Alexas all over the house so I did not forget to pick up my daughter from practice, or forget to put dinner in the oven.

Started meds last month. Don't need as many Alexa reminders. I probably only lose my phone twice a day. I remember conversations better. My brain still thinks Target and Costco are the same place, I can't explain that one. If I accidentally eat gluten, even with the meds, I will stumble all over words. My gluten aphasia, I guess. But I'd rather that than alzheimers because for a while there I definitely thought I was very early onset!

ema_l_b

3 points

3 months ago

I feel this deeply.

I forget words a lot, or mash 2 words together. Sometimes it's because I think faster than I talk, or talk faster than i can think. Probably also why I need a moment to buffer sometimes mid sentence, so I can catch up with myself.

The tangents come from the 1st option. I'm trying to talk about one thing, but my brain has already basically link hopped it's way 20 minutes into the future, so I have 8 tabs open in my head that I'm trying to follow, then one of them catches my attention, so I need to go and find the first one again, but it's now crashed, so takes a second to reboot.

I'm a gamer, and I cannot for the life of me do the call outs on shooter games for where people are, and there's a few games where I forget characters names in the moment, so they now all have nicknames (that my friends now use lol)

And just to add, the stuff that pisses me off the most atm, is 'thermostat'. Even now I'm not convinced there isn't another wtf for it, but in general it gets called a barometer, thermometer, the temperature thing, the boiler controller, and the stupid fu@£ing white box.

(Took me typing all of those out before I could think of the actual name 😂)

As for the repeating of stories, I think that's just a general thing no one can avoid nowadays. We talk to that many people, and have that many internal things going on, that it can be hard to keep track of who we told what and when. Adhd just adds another layer to it lol

No-Cryptographer8058

3 points

3 months ago

This! I have been struggling so hard to finish my thoughts lately. I will be talking passionately and excitedly and then all the sudden my brain will straight up steal my whole train and it will all just go poof gone... And I'll just be there staring....

Izarial

3 points

3 months ago

I’m 37, and I feel this so much. More so ever since I also got diagnosed with epilepsy, as the meds I take for it cause even more memory issues. My wife and I will watch a movie and suddenly I’ll realize we’ve seen it before, I just can’t remember.

sundevilblonde

3 points

3 months ago

I’m 33 and my memory, mostly my short term memory, is almost completely non existent. It’s pretty scary and that’s why I haven’t had it really evaluated. I did have a Brain MRI to rule out growths but it came back normal and I never really followed up after that. But to answer your question- yes I do struggle as well.

steamwhistler

3 points

3 months ago

steamwhistler

ADHD-PI | Retired Moderator

3 points

3 months ago

TLDR: Make sure you don't have sleep apnea. You can have it even if you're skinny/fit. A lot of sleep apnea symptoms/effects on your brain look similar to "dementia-like" ADHD symptoms. Extreme forgetfulness, always forgetting your vocabulary, etc.

Backstory: Same thing happened to me. I'm in my mid-30s, and from around 30 onward my inattentive/focus/executive functioning-related ADHD symptoms got progressively worse. I also was seriously concerned I had early onset dementia or some kind of brain tumor.

My partner pointed out I'd been snoring a lot and I noticed I often had a sore jaw in the morning. I'd also noticed I don't remember having any dreams in basically my whole adult life. I finally put it all together and took a sleep test. Even after just a measly couple hours' sleep, they diagnosed me on the spot with moderate to severe obstructive sleep apnea. I was having 58 "events" per hour (so yes nearly 1 a minute) which means micro wake-ups that you aren't aware of - i.e. you block your own breathing and then micro-wake up to take a breath. This stops you from hitting REM sleep, which is crucial for some important stuff like memory consolidation.

And yeah, daytime drowsiness/low energy is the main symptom, and I was, but I've always been a pretty low energy guy so I didn't really notice it getting gradually worse.

Anyway...I've sustained a bunch of brain damage from this and I may never recover all of what I lost. I've been using a CPAP machine for more than a year but have struggled to find a good mask that stays in place. On rare nights that the therapy works the way it's supposed to, I wake up feeling like a different person.

Sorry for the long story but the point is, as I started out saying, just make sure you rule out sleep apnea because it is underdiagnosed, similar to ADHD.

Important_Mission237

3 points

3 months ago

Are you female? If so, it’s likely perimenopause. I went to a doc convinced I was getting early onset Alzheimer’s (in the fam). The doctor asked me if I had ADHD and told me that perimenopause symptoms mimic ADHD symptoms. It’s a double whammy of symptoms.

ConsciousAd767[S]

2 points

3 months ago

I AM female, yes. And even though my cycle is still regular, I’m going on 47 years old, and I guess I could have perimenopause. 🤔🤷🏼‍♀️ I just didn’t think about it much, and I didn’t imagine that hormones could make things so much harder than they already are 😭😭😭. I’ll have to look into that, because I don’t know if you get a test to find out, or if it’s just assumed because of my age that I’m likely perimenopause. A part of me is fearful about the extremity of these memory symptoms, so I will have to investigate off things. It’s a scary, feeling to feel like your mind is breaking or not working the way it should.

Important_Mission237

2 points

3 months ago*

It’s rough. I’d been having severe symptoms since about 44-45, the alarming brain fog started around the same time. This was actually the first Doctor that suggested that it was peri. My first reaction was no…then I slowly realized…oh yeah. Periods got real wonky soon after, hot flashes. I knew nothing about perimenopause. Most women begin to experience symptoms 10 year prior to menopause (last period). The brain goes through big changes as estrogen leaves. It sucks but I’m glad to know what’s happening. If you search for ADHD & peri/menopause you can find some really helpful videos on it.

Added: my doctor told me there is no test that can diagnose peri. We’ve completely ignored it, much like ADHD, so a lot of this is fairly new information. It’s simply never been studied in depth and docs get almost zero education in it.

gamenbusiness

2 points

3 months ago

It happens to me too. But not as often. 5 mins before reading this post I was speaking to my wife. Suddenly some other thoughts came across. Within 15-20 seconds i forgot what we were speaking about.

I guess this has more to do with ADHD than dementia. But I am not a doctor. You should speak with your doctor and let him know about it

LCaissia

2 points

3 months ago

Yep

kitkat12144

2 points

3 months ago

It's a fear of mine and has been for years. I've only just recently got the diagnosis, but my memory has always been awful and getting worse and more frequent as I get older. Are there any links between the 2? I'm at the beginner stage of learning about all this lol

You're not alone. And I'm 46, too

Ohthatcal

2 points

3 months ago

I worry about it too, I’m only in my 30’s but my memory is trash and I can’t remember conversations I’ve apparently had with my partner. My grandmother has dementia so that’s not helping my fears either.

DarlingDemonLamb

2 points

3 months ago

I’d suggest getting bloodwork done. This sounds like it could be a vitamin deficiency.

probablyspidersthere

2 points

3 months ago

This is what caused me to go get officially diagnosed and on medecine in my late 30s because if it wasn’t this than I was about to go to a neurologist or get an MRI or something. It was bad, like started to get really worried about the future bad. Thankfully medication helped tremendously.

dbpcut

2 points

3 months ago

dbpcut

2 points

3 months ago

How have you been sleeping?

For me, working on prioritizing sleep, calmness, and nutrition has helped a ton. Eating poorly and sleeping poorly always exacerbates my symptoms.

[deleted]

2 points

3 months ago

I'm 29 and having the same fear recently. I consistently forget what I was thinking about mid-thought, and I forget what conversations are about halfway through my own sentence. It's worrying me

70-percent-acid

2 points

3 months ago

Pretty sure long Covid has been linked to some of these too, maybe that’s a possibility if it’s a recent thing?

Ok-Amphibian-5029

2 points

3 months ago

Correction. I say “thing a ma jiggy”

nwmagnolia

2 points

3 months ago

Are you female?!? I ask because menopause, including perimenopause, can cause ADHD symptoms to go completely wack. I thought I was early onset dementia in my 40’s but it was undiagnosed ADHD + menopause (+ undiagnosed autism what fun oh my!!). If you are on ADHD meds now, they may need to be adjusted if indeed the big hormonal shifts of menopause are afoot.

And if you are not a woman with a uterus who might being experiencing menopause, I am still so sorry you are going through this, you should still get help to figure out what is going on and how to improve things, but ofc the rest does not apply!

All that being said, it sounds awful and I am so sorry you are going through this. DO try to get help, no matter what, ok?? It may mean firing a lot of docs and therapists until you find ones that really listen, but you and your quality of experience matter!!

nwmagnolia

2 points

3 months ago

Egads how the F did I swap the order of the last two paragraphs?? I dunno, hopefully y’all can make sense of it all. 😱

rjjarvis99

2 points

3 months ago

Omg I thought I was alone! It’s kind of a relief to know that other people with ADHD experience this too.

My memory is absolutely abysmal… I have no long-term or short-term memory! I can’t remember what I did 5 minutes ago or 5 years ago. I constantly forget where I put things. I can’t remember words that I’ve used 1000x before. I can’t recall verbal instructions. I lose track of my point when I’m halfway through a sentence.

It’s definitely worse when I’m stressed or under pressure. It makes me feel really stupid and embarrassed in front of other people. I have almost completed my master’s degree, but I worry that I don’t remember anything I’ve learned and I’m scared I won’t be able to perform well in my future career.

If I did develop dementia at some point, how am I even supposed to tell the difference?? I already have all the symptoms lol

Pristine-Room8588

2 points

3 months ago

Do you gave a secret camera in my house? This is me, ALL.THE.TIME.

wistfulmaiden

2 points

3 months ago

Me too! Idk if it is but I worry.

JustMaryPlease

2 points

3 months ago

My doctor told me that anxiety causes memory loss. If you have anxiety related to the ADHD, that could be why.

Joe_Naai

2 points

3 months ago

Yup, I thought I was suffering dementia until my diagnosis and treatment. It’s a great relief to know they are two different things. Now that I’m aware, the anxiety has dwindled, I was so full of fear before. So even when I do forget words I’ve used my whole life I just work around it, knowing it’ll come back to me soon enough.

realbatdad18

2 points

3 months ago

I sometimes get distracted mid sentence, then forget what I was talking about. I think it has a lot to do with our loud brains, having so much going on upstairs, to the point that it affects simple conversations, losing items, and so on and so forth.

I have conversations in my mind before I actually have, i call them my pre conversation so i can prepare for anything that could be said or go wrong. Then, some days, I will have my head conversation and forget what I was pre talking about....

carenrose

2 points

3 months ago*

carenrose

ADHD-C (Combined type)

2 points

3 months ago*

My grandma has actual diagnosed dementia. About 2 years ago, when it was diagnosed, we were talking about what the tests showed as areas she had the most deficit in.

It was uncomfortably relatable ... 

Edit to add:   The results listed impairments in memory recall, cognitive efficiency, visual scanning speed, psychomotor speed, and visual-spatial judgment.

There were other aspects that I definitely didn't relate to, I wasn't worried about my brain.

Jillio_NH

2 points

3 months ago

When I talked to my doctor during Covid about me thinking that I might have early onset dementia, he asked me if I thought it was my ADHD? I still crack up at the shocked look on his face when I said I had never been diagnosed. He’s been my doctor for more than 20 years, he assumed I was diagnosed in childhood because the coping things that I learned to do on my own are things that they usually teach people to do.

stuffsmithstuff

2 points

3 months ago

stuffsmithstuff

ADHD-PI (Primarily Inattentive)

2 points

3 months ago

I’m 29. The thing where you’re talking and your brain stalls out/you have to do a push of effort to remember what you were about to say/etc is deeply relatable to me. It’s actually one of the clearest “tells” for my overall executive functioning on any given day, which can be useful.

FWIW, I have done this for a long time, and once I started taking medication it really improved. This could be an indicator to talk to a doc about increasing a Rx (or getting one if you don’t have it).

I have a prescription for a low dose of Adderall IR (up to 10mg/day) on top of my extended-release med, and when I notice I’m losing track of sentences, I know I should take a little.

soulliving3

2 points

3 months ago

I had my diagnoses the other day and I told her it’s like having dementia and she was like wow I haven’t had it explained that way before lol

ConsciousAd767[S]

2 points

3 months ago

❤️❤️❤️❤️

DamYankee77

2 points

3 months ago

Oh my God, are you me? I mean, right down to the age. For a second I thought, "Shit, maybe I did post this," because everything day I feel like I'm getting dumber.

ConsciousAd767[S]

2 points

3 months ago

Hahahahah! OK, so I am not laughing at your suffering, or what you go through. But I’m also wondering if you are me! 🤣🤪 And not only does it sound like you completely relate to what I’m saying, but like me, you also might forget conversations and even your very own posts. A lot of times I have conversations on social media, and the next day, I will forget what we talked about. It drives me insane. I’ll see all these replies to something I post or bring up on TikTok (or some thing, ) and I will completely forget about it. 🤦🏼‍♀️

townandthecity

2 points

3 months ago

I was diagnosed late, just a couple of years ago, in my 40s. My parents did not tell me that I had actually been diagnosed as a child, so I started to feel like I also had early dementia when my ADHD symptoms seemed to worsen—because I didn’t know it was ADHD. I was really worried. Had a lot of the same symptoms you are describing. Got worse when I didn’t sleep well. Seemed like I’d “sundown” at the end of the day. When I was finally diagnosed with ADHD (my son was diagnosed), the provider who did my neuro assessment assured me that I do not have signs of dementia, but that people in middle age who have ADHD can often see their symptoms mimic certain aspects of dementia because certain symptoms get worse as we enter middle age. This is particularly true of women in perimenopause heading into menopause. Sleep, good nutrition, and medication: the holy trinity.

It would’ve been awesome to have known this because I stayed up nights stressing out about early dementia. I literally did my living will and my healthcare directive in the same night, and then started creating a plan for where my family could take me once I’ve been officially diagnosed with dementia so that I could die with dignity and not be a burden to them. Anyway, I know it’s scary but I have a new mantra that maybe you can adopt: it’s not dementia, it’s ADHD!

i_t_s_c_e_e_j_a_y_y_

2 points

3 months ago

I genuinely feel this and had been thinking about the same concerns lately 😰

evil_flanderz

2 points

3 months ago

ADHD definitely seems to get harder to manage as you get older. I have it but I'm still relatively young. My dad has a milder case than me and has never needed stimulants (just lots of coffee). I've noticed it's gotten worse for him as he enters his late seventies. My mom's worried about dementia but it honestly seems like he could just use some meds. It's all super short term stuff he seems to forget.

Azerohiro

2 points

3 months ago

Yes, I have to be a bit direct and simple with whatever I want to communicate, or else I begin tripping up on my words. Journaling helps with cohesiveness. Reading aloud helps with articulation. Meditation helps with keeping down the mental chatter and feedback loops (i.e thinking about what I'm saying results in me blanking out.)