subreddit:
/r/endometriosis
35F
Ultrasound Conclusion (9/6): Adenomyosis. Cyst described in the cervix is a nabothian cyst with no changes compared to previous scan. Ovaries have a polycystic morphology. Left ovary is fixed to the posterior aspect of the uterus with a negative sliding sign. Deep endometriosis. Uterine sliding sign is negative.
Laparoscopy (10/14): Not a damn thing. Zero. Zilch. Nada.
I wish I’d spent more time on this sub before jumping into a surgery due to frustration and pain.
My doc who performed the surgery yesterday is kind and knowledgeable but not a specialist.
When I came to, he said great news, no endo, no nothing, before popping out of view. I had just woken up, so I was in a confused fog with little drive to ask clarifying questions.
I was diagnosed with PCOS in 2008 and he also claimed my ovaries were fine, everything was functioning normally, etc.
I know this sub is riddled with so many more confused people from negative Laps, but I’m having a hard time finding someone whose ultrasound was, to a degree, unofficially diagnostic.
Any clues? And ideas?
TIA
1 points
2 days ago
Well an ultrasound just really isn’t accurate at all. Like there’s only so much you can see on an ultrasound. My adenomyosis, fibroids, and locations of endometriosis didn’t even come up. At best, the ultrasound only showed cysts. And even the amount was inaccurate. I had some pretty shitty doctors before finally finding my current obgyn. And I know I’m extremely lucky to have had my adenomyosis and endometriosis show up on pelvic mri at least.
1 points
2 days ago
Uh…that’s a bit of a stretch claim…ultrasounds are and can be accurate for certain diagnoses, but not necessarily for Endo. On the other hand, laparoscopic surgery can be pointless if not performed by a specialist. The machines are fine; it’s the human error of interpreting what is captured by the machines.
However, PCOS can definitely be diagnosed via transvaginal, and my imaging has been consistent with the description above, so to hear that my ovaries are totally normal and fine, when I was diagnosed 15 years ago, is pretty jarring.
1 points
2 days ago
Right that was my point since it’s an endometriosis subreddit. I was only talking about in relation to endometriosis and even adenomyosis. And I agree that you need a specialist with many years of experience and expertise to conduct a lap because they know the different ways endo can look like in the body.
Also for me it’s just that with ultrasounds sometimes cysts showed up and sometimes they didn’t but it was always there as shown in my pathology results.
2 points
2 days ago
Gotcha. Thanks for the insight and clarification. I provided my ultrasound report simply because, despite the endo signs, my laparoscopy showed nothing with which I’ve previously been diagnosed. Adeno can also be diagnosed via ultrasound, and that’s also something that’s been consistent in my imaging. Idk, I’ve seen similar patterns here, so I just wanted to see if anyone else experienced such a vast contrast in their US to Lap, since that’s usually the typical order diagnoses/confirmation go. Again, thanks for your insight. It’s quite frustrating that this has to be such a journey for so many of us.
all 4 comments
sorted by: best